Is it too much to ask?
Is it too much to ask?
In a recent Sunday discussion we talked about grief, particularly about how we grieve for the loss of people we have never met, celebrities and public figures who we don’t know, but whose deaths cause many of us to feel profound grief.
Grief is a complex emotion and affects us all differently, but it is something which we all experience in some way. People often talk of grieving as a process, but it is not a linear path, there are twists, turns, surprises and bumps in the road. As a group of women who have all had a breast cancer diagnosis, we were aware that deaths caused by cancer often touched us the most, perhaps reminding us of our own mortality or causing us to think “that could be me”. One of our members said that once we have had a cancer diagnosis our ability to live a carefree life has been taken away forever; thoughts of death may become an everyday part of our lives. We all know that none of us will live forever, but cancer steals away our peace of mind and may leave us in a constant state of worry for whatever life we have left.
‘You’ll beat cancer if you stay
positive’. This topic and its impact on our emotional well-being has been one
of the most popular with hundreds of comments that hit close to our heart.
Our members have many a time
heard the words ‘stay positive’, ‘a positive mindset will breeze you through
chemo’, ‘You are so beating cancer’s arse’ ‘If you stay positive, you will get
through this’, ‘You caught this early, you’ll be fine’, ‘You’ve SO got this’,
‘If anyone can kick cancer’s arse it is you’, ‘You’ve got the better cancer’.
However, the reality of how these words make us feel is very far from positive.
What became quickly clear was a
sense of how our feelings of fear and sadness due to cancer are minimised by
others. We felt we were not allowed to be anxious, sad or fearful. A member
said, ‘it shook me to the core’, and another saying ‘it was deeply painful’,
when needing to smile whenever her cancer was mentioned. What we almost all
agreed on was that the relentless positivity force hindered our ability to
process the trauma that we had endured, minimising our emotions to meet the
expectation of others, and this we found utterly exhausting and effortful.
Many of us felt that putting on
our positivity cloak was a must for others around us as they would not be able
to cope. This extended to immediate family, friends, and colleagues. Sometimes,
we’ve had to apologise for not ‘coping’, amid not being allowed to grieve the
losses we experience due to cancer.
There was a sense that we felt
less positive whenever we tried to enforce this positivity, and so we’ve ended
up being selective in our approach, censoring what we say to whom and
pretending everything is fine and allowing ourselves the dishonesty to others
when our feelings are not validated. This has meant we’ve lost friends and
family members along the way.
The truth is that pretending
that we are ok when we are not, is not a helpful line to take. We are not
doomed and gloomed, we do have ‘positive’ days and we are hopeful and
resilient, we want to survive to the best of our ability, and this is a really
delicate point when it comes to secondary breast cancer. But the reality is
that our fears can be very real to us. The sadness from the loss to our
identity, and the side effects of treatment which linger on for years put us in
a vulnerable position and can be limiting. In fact, we are not fighting cancer,
but we are fighting the side effects of treatment. We acknowledged that
embracing our difficult and upsetting feelings can help us experience a
multitude of emotions that can only be beneficial longer term. We’ve learned
that suppressing our emotions will backfire, validating them, and addressing
them with appropriate tools can lessen the need for the ‘toxic positivity’
which we have found unhelpful.
An interesting point that
emerged was a delayed experience of Post Traumatic Stress symptoms when we’ve
in fact tried to be jolly and ‘positive’ through treatment. The reality of what
has hit us has emerged later after a few years. This evidence shows that the
inability to process the trauma that we have endured has led to a delayed onset
of PTSD symptoms which isn’t the longer term aim of ‘being positive’.
We can refuse to be jolly and
sunny when having sad days. We believe that a positive outlook is helpful of
course but not the relentless optimism which can be blinding. We have learned
that we can accept our vulnerabilities without resigning to them, and by
embracing our emotions we are not denying them the attention they deserve.
We
agreed that allowing us to ‘feel’ is to ‘empower’. A balanced approach to our
emotional experiences will suit us better longer term. In fact, there is good
evidence to show that one of the reasons behind depression is the inability to
fulfil positive expectations. We do not want to feel depressed, we want to be
able to thrive and grow from our trauma, so counter intuitively or not forcing
the positivity cloak on can only increase the discrepancy between where we are
and where we are expected to be.
The focus of a recent Sunday discussion topic allowed us to explore and discuss the effects of our breast cancer diagnosis on our partners and how we are affected by their coping strategies. A diagnosis of breast cancer is a hugely physical, mental, and emotional challenge; surgery, radiotherapy, chemotherapy, and other breast cancer drug treatments can stretch us to our limits of coping. With that shared understanding of the challenges that breast cancer presents to us, Sunday night’s discussion provided an opportunity to look at how our partners’ coping strategies impact us. Partners’ ability to cope and our response to that are inextricably linked as our conversation highlighted.
"Who/What is the hero inside yourself?" A recent Sunday discussion talked about what we are proud of, what makes us strong, what it is that keeps us going through all we have to endure?
Sometimes it’s difficult to see oneself as any kind of hero, more often we are focused on day to day tasks, the mundane roles we play, or the struggles and pain we deal with. Often we don’t see our own strength or our inner hero until we have time to stop and reflect on events, be those in the recent or distant past.
It was interesting that many of our members opened their contribution to this discussion by describing how they struggled to find their hero within. As the discussion progressed we found our strengths and saw the beauty inside ourselves. Strength was a recurring theme, many of us talked about an inner strength, often brought to the fore by our breast cancer diagnosis; being faced with our mortality and the trauma of cancer awakened what one member called her “steely core”. We found courage and determination, stoicism and self-awareness, we realised that we are often stronger than we knew. A few members related that they were now braver than before, they were willing to try new things and were less afraid of failing. “With cancer suddenly thrown into my path, I realised I had no reason NOT to try, so I did.”