Wednesday 12 October 2016

Weekly Discussion Summary ~ How to Live with Cancer

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Autumn has well and truly arrived and the longer evenings offer the chance for greater reflection. In this week's discussion, we explored 'how to live' with cancer and the effects of cancer.

Our discussion was inclusive of primary and secondary breast cancer, we are very aware of the different implications of each diagnosis, but also how important it is to learn about secondary breast cancer and consider it on a continuum to primary breast cancer.

We take our vulnerability forward, whether we are trying to move on after treatment for primary breast cancer, trying to come to terms with the limitations that face us as a result of our treatment, or when cancer returns and we are on continuous treatment. This was an opportunity to talk to one another about our concerns and the fears that affect us all, and to learn from one another.

#ResilienceDiscussion



Day 12 #pathways2resilience ~ Zara

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Special Feature Edition: Pathways to Resilience: Embracing our Vulnerability, Celebrating our Resilience

My text book of cancer emotions...

They say that a picture speaks louder than a thousand words. For Zara, an artist and a member of our group, a picture conveys more than a thousand emotions, mixed, moving and intensifying. They speak quietly, yet are penetrative. Zara's art on conveying the many emotional roller coasters that breast cancer brings with it, is breathtaking. Her sketchbook, her companion while undergoing chemotherapy, sings. Take a look at how she's used her medical notes to convey the many mixed emotions of pain, fear, gratitude, love, and despair in one sketch: "I want to make something beautiful out of something ugly". Landscapes post treatment look ambiguous, showing the uncertainty that covers the seeds of our survivorship and our hopes.

For our month long project #pathways2resilience, we are delighted to introduce Zara's first blog for Panning for Gold, 'My sketchbook of breast cancer emotions'.

I was diagnosed with breast cancer in 2014 aged 51. Very quickly I had a mastectomy followed by chemotherapy. For a woman who has always been fairly neurotic and prone to anxiety and depression I took it well. I was "strong", "brave" and even funny- apart from when I wasn't but I kept my meltdowns private. I felt very grateful for having children old enough to have left home and not to have to witness the dark days. My husband was wonderful, I have great friends, countryside, lucky me!



'On being diagnosed with breast cancer' (May 2014) 130 x 150 cm


Actually, I hate the narrative of being strong and brave. Also I struggle with the endless requests for donations, the videos on social media whisking us through the 'journey' - Hospital, baldness, cats on the bed, followed by pink balloons, marathons and tears of joy! I get it, but for some reason it makes me angry. Perhaps because we struggle financially and I want to dedicate my time to other things rather than breast cancer. Then I feel guilty and mean, but that's my "stuff".



Before becoming a full time painter in 2009 I was a Social worker working with the most damaged children and families. In latter years I worked therapeutically with families affected by addiction. Using art to help others express themselves was an aspect of my work that I loved. It wasn't about being "good" at it, but an opportunity to work visually to explore and manage feelings. Art has always been a part of my life. Painting the landscape, being out there with myself, escaping from everything else and doing what I love to do, ticks all my boxes. I like painting portraits as well and drawing and sketching and doodling – doing anything that involves art.

I took my sketchbook to every chemo session. Horrified by the red liquid going into my veins I looked away and drew like a maniac, sometimes I would sketch the patients opposite me.



For some reason I kept all my medical notes. I remember thinking "I want to make something beautiful out of something ugly" My first collage wasn't beautiful at all. But I think I achieved that with 'Hot cheeks' and with some of my recent work. They are not so graphic now. Little pieces of Tamoxifen packets woven here and there, hidden in the landscape for the viewer to spot or not. I follow the Building resilience in breast cancer FB page but rarely comment. My respect and admiration for the women on there goes beyond words, it scares me too. So far I have been lucky. The "gift" for me has been a creative energy and on a good day, an ability to live in the moment.



Later I shall be at the hospital having a lump checked out on my remaining breast. "I'm sure it will be fine" I say to others and myself. But deep down I am terrified.


At the chapel (2) Charcoal & collage - 130 x 150 cm




www.zara-McQueen.co.uk




#panningforgold #pathways2resilience
#bcresiliencecentre #breastcancerawareness

Tuesday 11 October 2016

Day 11 #pathways2resilience ~ Fran

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Special Feature Edition: Pathways to Resilience: Embracing our Vulnerability, Celebrating our Resilience

Fran, another wonderful member of our centre, shares her resilience with us for our month long feature #pathways2resilience:

Hello my name is Fran,

I found my very big lump on the 21st of December 2014 and a smaller one too; it was a huge shock. I was diagnosed 9th January 2015 with grade 2 breast cancer and had a mastectomy 4th February with an implant reconstruction, but it didn't last so there was a second operation on the 20th March 2015. Then, 4 heavy doses of chemo which made me ill for a week each time, then radiotherapy which gave me a boost.....then back to work on the 21st August 2015 - 8 months later.

My youngest son asked 'Will you die?' I said no.....and I kept my promise....the thing that helped me personally was my positive attitude, my resilience, because I am grateful to everyone who looked after me. I am lucky as it could have been so much worse.....now I live life to the brim. I wake up every morning and I am happy as I am alive, yes my bones ache because of the medicine I have to take but it's okay....

Some things do not matter anymore, but my family, my boys, my partner and his children, my friends…that's what matters, telling them I love them matters...being positive is important to me. I look at things differently now. Life is good.



#panningforgold #pathways2resilience


#bcresiliencecentre #breastcancerawareness

Monday 10 October 2016

Day 10 #pathways2resilience ~ Anita

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Special Feature Edition: Pathways to Resilience: Embracing our Vulnerability, Celebrating our Resilience

Anita is a dedicated ambassador of our Centre. The insight she brings to our private group fills every one of our members with hope and serenity. With her knowledge of mindfulness meditation and counselling her comments and guidance on our pathway to resilience is much needed. She is interactive and brings much valuable advice in our everyday posts as well as our Sunday discussions. We love Anita and so do all of our private group members!

I had breast cancer and I'm making room for the activities I like doing.

I love being an ambassador for the Centre for Building Psychological Resilience in Breast Cancer. I stumbled across the private group after spotting a post seeking research participants, and I'm proud to have been part of its growth. I can speak my truth there and know I'll be acknowledged. I am also delighted to support others by commenting and sharing thoughts and ideas.

Around two and a half years ago I left my stressful corporate job with a view to completing a hypnotherapy and counselling course leading to a new career. I spent the summer having long lunches with friends. I took on some challenging voluntary work in a hospice in the spiritual care team, and everything was going swimmingly. Then following a routine mammogram came my breast cancer diagnosis, stopping me in my tracks and forcing me to spend a long winter travelling between my sofa and the hospital.

My second year cancerversary looms. These days I'm seeking a quieter life: long lazy days filled with dog walks, yoga, reading, baking, writing, making cards - lots of solitary pursuits that feed my soul. I've joined a choir, which makes my heart sing. I volunteer at a community cafe, supporting young people with disabilities and learning difficulties. I'm still studying, which gives me the goals and projects I thrive on. Oh yes, and I am still a lady who lunches frequently.

My wonderful partner Geoff, who has been my solid rock for nearly 30 years, works so hard to support me. I have a small pension from my old job, and if we can manage on what we have I'm not going to go back to work. My two amazing boys are out there in the world making their own way. It's my time now, and my goal is simply to live my life my way.





#panningforgold #pathways2resilience
#bcresiliencecentre #breastcancerawareness





Sunday 9 October 2016

Day 9 #pathways2resilience ~ Jackie

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Special Feature Edition: Pathways to Resilience: Embracing our Vulnerability, Celebrating our Resilience

Jackie Buxton is a writer, editor and teacher of creative writing.
Jackie used her experience of an aggressive form of breast cancer to inform and dispel some myths about a cancer diagnosis via her popular blog: Agenthood and Submissionville. These posts became the frame-work of self-help memoire, Tea & Chemo (Urbane Publications, November 2015) which has a five star rating from over 75 reviews.

Jackie’s first novel, Glass Houses, has been recently published and is about two women's stupid mistakes, the ramifications and the silver linings. When not writing or reading, over-seeing house and teens, Jackie can be found running, cycling or tripping up though the beautiful Yorkshire countryside.

https://www.amazon.co.uk/Glas.../dp/1910692840/ref=sr_1_1... 



#panningforgold #pathways2resilience


#bcresiliencecentre #breastcancerawareness

Saturday 8 October 2016

Day 8 #pathways2resilience ~ Lynn

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Special Feature Edition: Pathways to Resilience: Embracing our Vulnerability, Celebrating our Resilience

"I've learned to not to take life for granted..to follow my dreams...."

I was diagnosed with breast cancer and Paget's disease. I thought my world had come crashing down.

My first thought was how I'm I going to get my breasts out for all these strangers I'd never met before - doctors, nurses, wound nurses etc. Well let me tell you every person I met along the way treated me with nothing but dignity and care, how wrong my concerns were. I was very lucky as it was caught very early. I had to endure a mastectomy and then a reconstruction that failed. I'm now awaiting a further reconstruction.

It may sound strange to say I wouldn't change being diagnosed with cancer, honestly! I've learnt what matters and what doesn't, I've learnt how to step off the wheel of life when needed, I've learnt not to take life for granted, I've learnt to follow my dreams, who my real friends are. Lastly I've learnt to take control. Don't be frightened, don't be scared. If you have any worries or concerns please seek medical advice. I did and it's saved my life.

Lynn, another wonderful member of our centre, shares her resilience with us for our month long feature.

Friday 7 October 2016

Day 7 #pathways2resilience ~ Caroline

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Special Feature Edition: Pathways to Resilience: Embracing our Vulnerability, Celebrating our Resilience

Caroline, is a stubborn runner, even in the midst of chemotherapy, she continued to run – seldom would you find someone in her condition to even make it round a small park, walking slowly. She believes that striding to achieve small goals, and stepping that inch out of your comfort zone, can help build resilience, slowly and steadily. Her small children love her; and we love her too.

For our month long feature #pathways2resilience we are thrilled that Caroline has submitted this new blog post:


Showing Breast Cancer Who’s The BOSS!


Being asked to write a piece showcasing resilience after a breast cancer diagnosis made me stop and reflect on the past 2 years. Have I really demonstrated resilience? Or is it just a ‘fu*k you cancer’ attitude, refusing to let cancer stop me doing the things I enjoy?  What exactly is resilience anyway?  According to the American Psychological Association resilience is defined as the process of adapting well in the face of adversity, trauma, tragedy, threats or significant sources of stress — such as family and relationship problems, serious health problems or workplace and financial stressors. It means "bouncing back" from difficult experience.  Have I bounced back? From my perspective, if I am supposed to be a bouncy ball, the ball has most definitely bounced in a perpendicular direction to the path it was on previously, not back to where it came from. I think change is inevitable after a major trauma like an unexpected life threatening illness, so maybe by accepting that and not resisting it I am demonstrating resilience.




Life doesn’t stop just because you’ve got cancer. Having young children whilst going through chemo is exceptionally difficult. The outside world didn’t see the Caroline that couldn’t get out of bed, or change a nappy or do the school run. The outside world saw the Caroline who put on a brave face and tried her best to carry on as normal. However being resilient doesn’t mean not showing emotions, crying, or being unable to ask for help. The tears were few and far between but they were certainly there, and help was offered in abundance, and I quickly learnt to accept it and ask for it when needed.

How I dealt with my cancer diagnosis was never a conscious decision. It was never an act, or a choice to behave in a certain way. I truly was just being me, and coping with the shitty hand I had been given the only way I knew how. I find writing about my experience very cathartic, whether that’s by posting about my treatment on Facebook, writing poetry, journaling or writing the occasional blog. If anyone reads what I write then that’s great, and if my words help others then that really makes me happy.

As a species human beings are wired for connection. Something that has helped me enormously is meeting other women (and men) who have gone through the same thing I have and therefore ‘get it’. Whether that’s by meeting people in real life or in private Facebook groups, you always know that somewhere there is a friendly ear willing to listen to any concern, however mundane it may seem, and the act of being able to talk and accept support in itself strengthens resilience.

Learning to be kind to myself has been a challenge. Acknowledging that it is OK to treat myself nicely, even if that’s just by sitting on the sofa and reading my book before getting to the end of my never ending to do list, or saying no to people instead of always saying yes, has been hard. I am however learning that it’s OK to put myself first sometimes – everyone knows the oxygen mask analogy. 

To me, continuing to run whilst undergoing treatment doesn’t demonstrate resilience – that was pure stubbornness, which by its unyielding nature is probably the antithesis of resilience. I was determined to show cancer which one of us was the boss. As I’ve mentioned previously running provides me with an enormous amount of stress relief, so using cancer as an excuse not to run was never an option. I needed an outlet for my pain, anger, frustration and general pissed off-ness more than ever.  However it is recognised that having achievable goals can help build resilience, and for me my goal was to be up and out the door with my running shoes on 6 days after every chemo session. That gave me 2 weeks of running before chemo induced yuckness forced me back into my hole for a few days.  So although I didn’t realise it at the time, by setting and achieving a goal I did perhaps foster some resilience in myself.

I have definitely stepped out of my 'comfort zone' many times over the past 2 years, and every time I have felt stronger as a result of it. I have strutted my stuff on a cat walk (terrifying but fun), competed in 3 triathlons, and given a speech about my experience with cancer to 1500 people (amazing!) to name just a few.  Whilst I can’t stand the expression ‘what doesn’t kill you makes you stronger’, having cancer gave me the courage to do those things which in turn has made me stronger, so perhaps I do have to admit an indirect correlation between the two, even if I hate the words.




Finally, I have developed a regular meditation practice and participated in 2 mindfulness courses. This has allowed me to develop a sense of awe and appreciation for the simple things in life, whilst enabling me to experience the world through a fresh pair of eyes. I am very lucky in that I have a devoted husband and two amazing children who have been with me every step of the way. 

So am I resilient? Was I already resilient and has cancer just made me more so? Or am I just stubborn, determined and in possession of an abundance of grit? I am not sure I can answer that question, but what I do know is that I am continuing to learn more about myself every single day. 

#panningforgold #pathways2resilience
#bcresiliencecentre #breastcancerawareness